Urinary incontinence and erectile dysfunction are two major concerns of men facing radical prostatectomy. In this dialogue from a recent issue of our Prostate Bulletin, Johns Hopkins specialists respond to patients questions about these important issues.
Q. One of the major reasons I decided to have surgery for my prostate cancer was that I thought I would be able to maintain my erections after my prostate was removed. I am 72 years old and I went to a highly-recommended hospital for the prostatectomy. The top surgeon performed the prostate surgery, sparing both erection nerve bundles. Unfortunately, it has been eight months and still no suitable erection.
I have tried 100 mg of Viagra and expected some results within 45 minutes of taking it. However, except for some nasal stuffiness, nothing happened the three times I used the drug. Any thoughts on improvement for me, or is this just the way things are going to be? Tampa, FL
A. Its unusual for a man to undergo radical prostatectomy over the age of 70 these days, but in selected cases, it is a reasonable choice. The majority of men in this age group, however, will take so long to recover their erections that its fair to tell patients in their mid to late 60s that recovery of erections is unlikely, despite perfect nerve bundle preservation.
If you are getting nasal stuffiness from Viagra, it means you are getting adequate blood levels of the drug, so the problem is with the inadequate response of your erectile tissues. A vacuum erection device is one way to help, but in men who wish to be sexually active with the greatest likelihood that their treatment will work, its most reasonable to move right to injection therapy.
Q. This is just a note to thank you for your guidance that helped me decide on having surgery for my prostate cancer. I am 62 years old and had been diagnosed with a T1C, Gleason 6 cancer. My prostate surgery was performed at Johns Hopkins and I was home two days after the procedure. I was walking 40 minutes a day soon after. My catheter came out 10 days after surgery, and I have been dry since. Erections are another story, but I am optimistic that erectile function will return on a reasonable timetable. My wife is happy to report that there are already hints of life. More importantly, my pathology report indicates the highest probability that my cancer has been removed.
The point I would like to make is that men should not hesitate to have surgery for their prostate cancer. In the hands of a superb surgeon working at a great hospital, you give yourself the best chance for prostate cancer cure. Shaker Heights, OH
A. Congratulations on a great result. Last month we celebrated the 25th anniversary of the first nerve-sparing radical prostatectomy performed by Dr. Patrick Walsh at Hopkins in 1992. That first patient is now 25 years out from his surgery with no sign of prostate cancer and an excellent lifelong functional outcome. Thousands of men have had similar experiences.
One always has to take testimonials such as yours with some caution and compare them to larger studies that take the experience of many men into account. We know that not everyone will have a perfect result from prostate surgery, although we want them to. But when they do achieve cure, continence, and return of erectile function, we are happy, and we want such patients to tell their stories to encourage others facing difficult choices.
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Users and editors may post comments here at their own discretion. The views expressed do not constitute medical advice and do not represent the position of Johns Hopkins Medicine or University Health Publishing, which has no responsibility for its content.
If the first nerve-sparing surgery was performed in 1992, it is the 15th anniversary, not the 25th. Incidentally, do we have data-driven research on nerve sparing vs non-sparing concerning biochemical failure and other therapeutic markers?
Posted by: Glaucio Soares | October 13, 2007
You said: men over mid sixties, the recovery of erection is unlikely, even if the nerve sparing was successful. If the man had the ability to get the erection prior to the operation, and the nerve sparing succeeded, why not? WW Metts wwmetts@q.com
Posted by: wyvarian | October 13, 2007
In your answer to the 72-year old you said radical prostatectomy is not usually recommended for patients more than 70 years old. Can you say why?
Posted by: Ces2 | October 13, 2007
I would like to share my experience in the use of alternative therapy for my treatment of prostrate cancer. I was diagnosed with T1 and a Gleason of 6. I am 69 years old and I believe that I will die of something else before I die of prostrate cancer. I have chosen "quality of life over quantity of life" and with the aid of an alternative medicine urologist have been using vitamin and herbal supplements to prevent the progession of the cancer. My PSA was 4.8 prior to my starting the vitamin/herbal regimen, and after four months of supplementation is presently 2.93. In addition to the supplementation I take, I strongly believe that my mindset not to listen to the doomsayers advising immediate surgery, but rather to go forward in the most positive of mental outlooks, has contributed greatly to my cancer not progressing. Perhaps this is even more evidence of how the mind can control the body.
Posted by: jcken | October 14, 2007
I had prostate surgery six weeks ago, at age 68. How soon can I expect to see some control of the bladder function (nothing apparent yet)? No sign of erectile function either. Otherwise, physical stamina is improving daily and I feel good.
Posted by: RecentSurgery | October 15, 2007
I'm age 64, T1C, Gleason 6 and 7. I, too, went the route of alternative means with Lycopene, Vitamin D, and others. Managed to drop PSA 10.6 to 6.0 in three months and thought I was on my way to keeping this cancer under control. Unfortunaly, the biopsies did not reflect the declining PSA scores. My urologist did not mention the "penis shrinkage" factor in the surgery discussions. Nor were any references given to me...red flag. THus, after much study, I underwent non-invasive proton beam therapy at Loma Linda Univ with 150 other men over a 9 week period. With over 12,000 procedures behind them, the LLUMC treatments show excellent results, but little is ever mentioned of proton beam therapy via the Johns Hopkins documentation, even though MD Anderson, Univ. of Florida, Boston General, etc. offer this non-surgical technique. Urinary and erectile dysfunctions are not an issue with this approach. I just married again and both functions are performing at peak. Why this proton beam approach is so little known amazes me. Pioneered at Harvard, it has been around in the prostate procedures for nearly 13 years and remains a quiet wonder in this prostate cancer world. Study hard, make your choice, and be happy with whatever approach you select. But this is not a vasectomy...there is no going back, once cut.
Posted by: Larry Hagemann | October 15, 2007
Wondering why so little is known about Proton Bean therapy? How about HIFU, High Intensity Focused Ultrasound, that has been used for years in Europe? You have not heard much about this highly successful, non-invasive, non-radiation procedure because it is just now in clinical trials in the US. Only at the most recent national meeting for Urologists did the subject of HIFU even come up. To receive this treatment US patients have been traveling to Canada and the Carribean, but you will not hear about this treatment from your Urologist since it is not approved yet in the US. One starts to understand why the US is behind 21 other countries in survival rate.
Posted by: jcken | October 18, 2007
When it comes to possibly getting your "manhood" sliced and diced it truly pays to look into Global prostate procedures including HIFU, Proton Beam, and other approaches. Japan and Europe have been marching at a much faster pace than the States. The HIFU apparatus originated in the States, but is not approved here (yet)...Heidelburg (Germany) and other places set the pace here. Study, ask, interview previous patients, look around, search the internet, read R. Marckini's book :"You can beat Prostate Cancer" and take personal charge of your life. Your doctor is a consultant, not a god!
Posted by: Larry Hagemann | October 18, 2007
My urologist, who is on the faculty at a well-known teaching hospital, had recommended lycopene, vitamin D, and selenium as adjuncts in preventing prostate cancer or slowing its progression. And indeed the literature reports drops in PSA titre with regular use of one or more of these supplements. But I've never been able to get an answer, either from urologists or by reading the literature, as to what's happening. Does taking these supplements actually suppress prostate cancer growth or does it merely lower PSA titre, perhaps by blocking PSA production, destroying or binding PSA, or interfering with the test chemistry? If so, then taking these widely-used supplements could actually be masking prostate cancer or its growth, a disturbing possibility. Does anyone know of any clinical or laboratory data that addresses this or is there good medical opinion on the subject?
Posted by: JonK | November 22, 2007
Warning to those who rely on high-tech non-surgical procedures, specifically Proton Beam, HIFU and ESPECIALLY alternative: I am a physician who took care of and watched my uncle die from metastatic prostate CA involving ONLY his bones. He suffered in the hospital for one full year before going home to a Hospice situation. His pain was intolerable as virtually every bone was riddled with the cancer and fractures were everywhere, as if he survived a failed parachute jump! The point is that prostate cancer is notoriously SLOW to progress, but once out of its capsule the progression CAN be relentless and merciless. IF AT ALL POSSIBLE, CONSIDERING AGE, GLEASON SCORE AND STAGE AT DIAGNOSIS, BE VERY THOUGHTFUL BEFORE YOU DECIDE TO EXCLUDE TOTAL PROSTATECTOMY AS THE RIGHT CHOICE!
Posted by: familyhx | November 22, 2007
JonK, Here is a recent research article (very impressive, I might add) on the subject you queried: J Natl Cancer Inst. 2007 Aug 1;99(15):1200-9.
Posted by: familyhx | November 22, 2007
I have read about certain foods and their conduciveness to prostate cancer development, specifically that the omega 6 oils are dangerous. Are soy products good or bad in regard to cancer development? Do you corroborate this information? Do you endorse any sources of information re cancer and nutrition?
Posted by: DavidAAA | November 23, 2007
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JohnsHopkins Prostate Bulletin: The Radical Prostatectomy, by Dr. Patrick Walsh; Rare and Unusual Cancers of theProstate On the 25th anniversary of his first performing a radical prosatectomy, Dr. Patrick Walsh brings you up to date on what you need to know about this procedure, and how to choose the best surgeon for YOU. Plus, the prostate can be affected by other forms of cancer than prostate cancer. Could your doctor be missing something?Readmore...
JohnsHopkins Prostate Bulletin: The Future of Prostate Surgical Technology; The AUA PSA Testing Debate The latest information on emerging technologies to treat prostate cancer, including robotic radical prostatectomy, and HIFU. Plus, learn more about the ongoing debate concerning the benefits versus drawbacks of PSA Testing for older men, straight from the American Urological Association Conference Debate.Readmore...
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